Hello, I'm Julie and happily married to Chris. We have 2 kids between the 2 of us. Ken & Alexis.
My daughter, Alexis is battling 2 diseases that have No Cure!
I am trying to raise awareness to these, Chiari Malformation and Syringomyelia. Alexis' main symptom was scoliosis. There were other symptoms that I didn't realize until later.
This disease is affecting 300,00 people a year. And many people have NO symptoms. Or don't realize that they ARE symptoms.
1 comments:
Looks like fun!
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